Perezida wa Zanzibar, Dr Hussein Ali Mwinyi, yategetse ibigo bya Leta gushyira imiti ivura indwara zidasanzwe muri politiki y’ubuzima kugira ngo abana bahuye n’ibibazo by’ubuzima bashobore kwitabwaho cyane cyane ogisijeni.
Ku mugoroba wo ku wa kabiri, Dr Mwinyi yabitangaje ubwo yaganiraga n’intumwa z’umunsi mpuzamahanga w’indwara zidasanzwe wizihizwa buri mwaka ku ya 28 Gashyantare.
Yasobanuye ko guverinoma yari izi ko izo ndwara zihari, akomeza avuga ko izakomeza gukangurira abaturage kugira ngo abaturage bashobore gufata ingamba.
Indwara idasanzwe ni indwara yibasira abantu bake cyane ku kigereranyo cy’umurwayi umwe ku bantu 200.000. Hariho indwara zigera ku 6.000 zizwi kw’isi yose. Abantu barenga miliyoni 300 kw’isi yose babana n’indwara zidasanzwe, bingana na 5% by’abatuye isi, hafi 75% by’indwara zidasanzwe ziboneka mu bana.
Indwara idasanzwe yibasira ijanisha rito ry’abaturage. Indwara nyinshi zidasanzwe ni karande zituruka mu miryango, bityo zikaba zihari mu buzima bw’umuntu bwose, nubwo ibimenyetso bidahita bigaragara.
Muri Tanzaniya, umunsi mpuzamahanga w’indwara zidasanzwe wateguwe n’ibitaro bya Aga Khan ku bufatanye na Ali Kimara Rare Disease Foundation (AKRDF).
Ati: “Nishimiye kwifatanya nawe mu kwizihiza uyu munsi w’indwara zidasanzwe. Nibyo koko abo bana bakeneye ubufasha. Nategetse ibigo bya Leta gushyiraho politiki izahuza na gahunda za leta, cyane cyane iziri muri Minisiteri y’Ubuzima kugira ngo abo bana babone ibyo bakeneye bidasanzwe ”.
Usibye ibyo, guverinoma ya Zanzibar izareba niba bishoboka gutangira gutanga ogisijeni ku buntu ku bana barwaye indwara zidasanzwe kugira ngo bahumeke.
Uwashinze AKRDF Madamu Sharifa Mbarak yagize ati: “Turashimira Perezida Mwinyi ku magambo meza yavuze ku ndwara zidasanzwe. Turishimye kuko kwivuza bihenze kandi aba bana bakeneye ogisijeni mu masaha 24. ”
Yavuze ko bakomeje guhamagarira abandi bafata ibyemezo gushyiraho politiki izashyira mu byiciro izo ndwara zidasanzwe kandi ikemerera ikigega cy’igihugu cy’ubwishingizi bw’ubuzima (NHIF) gutanga ubwishingizi ku bana bahura n’izo mbogamizi.
Ku rundi ruhande, umuyobozi w’ishami ry’ubuvuzi bw’abana bo mu bitaro bya Aga Khan Dr Mariam Noorani yavuze ko indwara idasanzwe yarazwe kandi rimwe na rimwe ababyeyi bakaba badafite ibimenyetso by’indwara idasanzwe, ariko ko bashobora gutwara gene idasanzwe, ikabitera. .
Ati: “Kuvura uyu mwana bihenze cyane kandi turi ibitaro byigenga. Icyo dukora kugira ngo barebe ko bavurwa ni uko dukorana cyane n’ibindi bitaro, cyane cyane ibitaro by’igihugu bya Muhimbili ku bufatanye n’abikorera.Turahamagarira abaturage kujyana abana babo bafite ikibazo nk’iki mu bitaro ”.
70% by’indwara zidasanzwe ziterwa n’indwara zishingiye ku ngirabuzima fatizo kandi abarwayi benshi ni abana. Izi ndwara zidasanzwe nta muti zifite. Abana bagera kuri 30% bafite uburwayi budasanzwe bapfa mbere y’imyaka itanu kubera kutita ku buzima bwabo kugira ngo bagenzure indwara zitandukanye zifata abana.
Izi ngaruka zigaragara cyane mu bihugu bikiri mu nzira y’amajyambere harimo Zanzibar na Tanzaniya muri rusange aho usanga bishoboka cyane kubona amakuru, kuboneka, kumenyekanisha abaturage no gufata ibyemezo bijyanye n’izi ndwara zidasanzwe.
Izi ndwara zishobora gufata igice icyo aricyo cyose cy’umubiri ariko bidatinze ingaruka nyinshi zacyo zigaragara kuri sisitemu y’imitsi, imitsi n’ubwonko. Ni muri urwo rwego yaba Tanzaniya cyangwa Zanzibar ubwayo idafite imibare nyayo kuri ubu bwoko bw’indwara birashoboka ko hari abarwayi benshi bapfa batabizi.
@Rebero.co.rw